Welcome!

Welcome to It’s Not About The Chair. I’m Lyena Strelkoff and I make my living empowering people with true, transformational stories about my life with a spinal cord injury. My hope is that this blog will be a place to laugh, learn, heal and grow together. Because, ultimately, it’s not about the chair, or any other obstacle we might face. It’s about the choices we make, the spirit we bring, and helping each other thrive. I’m so glad you’re here.

Think your story isn’t powerful enough? Think again.

So, my story has gotten a lot of visibility this week. I’ve been all over Facebook with it, promoting my upcoming free teleseminar for purpose’preneurs. I performed a piece of it last night at a storytelling salon, along with my husband, Dean. And.. dun, dun dun… I was featured on National Public Radio over the weekend!! That’s all wonderful, and I know from the feedback I’m getting that my story is making a big impact on people and their lives. Terrific. That’s exactly my desire.

But I’ve also heard some feedback that makes me sad. It’s from mission-driven entrepreneurs who, upon hearing my advice that their stories can create meaningful connection with their ideal clients, say, “Well, I don’t think I can do that… I don’t have a story as powerful as yours.”

If you hear me say one thing, let it be this: Just. Not. True.

Here, I’ll give you an example.

Some of you may be familiar with Lisa Nichols. She is a very successful motivational speaker who came to prominence after the movie The Secret was released. I’ve heard her speak twice, the first time at a church in my area.

Lisa has some intense stories, but the one that moved me the most, that has stuck in my head for nearly 8 years, is beautifully ordinary.

Lisa was a competitive swimmer as a teen. And she was BAD. She was constantly coming in last, and by a long shot. Desperate to quit, she went to her grandmother and complained. But her grandmother was a wise one. She reminded Lisa that she came from survivors, winners in fact. This had to be true because Lisa was alive, and those ancestors who weren’t survivors didn’t live to create offspring. She managed to instill in Lisa not pressure to perform, but a belief in her own worthiness.

At the next swim meet, Lisa had a mantra in her mind. I don’t now remember what it was — it doesn’t actually matter. What matters is that she had it in her mind from the moment she stepped onto the blocks. With each stroke, she chanted her mantra, in easy, perfect rhythm.

When she finished the race, she pulled her head out of the water and discovered that she was alone. And she thought, “Dang, I’m so slow, everyone else finished and got out of the pool!” Then she saw the other swimmers coming toward her. She’d beaten everyone by nearly a pool’s length!

As I write this story, it brings tears to my eyes. It’s still that powerful for me. And I was never a competitive athlete. But I have felt like a failure; I have wanted to quit; and this story gives me hope. Plus, it gives me a hint about what I can do to “win” the next time I’m experiencing repeated failure.

That’s powerful stuff. Memorable, meaningful, and relevant… All the things you want your story to be. And it has nothing to do with catastrophic injury or child abuse or drug addiction or near death experiences. It’s about swimming, for pete’s sake… And it works!

So, the bottom line is this… If you’re telling yourself you can’t move an audience (and therefore shouldn’t speak) because you don’t have a powerful enough story, I’m telling you,  you’re wrong. You may not know exactly what that story is, or how exactly to tell it, but those are different issues and completely solvable with the right support.

What’s more likely than that you don’t have a good enough story is that you’re having trouble valuing the stories you have. You’re having trouble valuing yourself and your life experience. I’m happy to say that, too, is completely solvable with the right support.

So here’s a bit of support to consider. This week, I’m offering the first of two, complimentary teleseminars called, Speak to Change Lives and Make Great Money — What Paralysis Taught Me. This is a training specifically designed for purpose’preneurs who want a heart-centered way to get more clients, increase their income AND make a profound difference in the lives of other people.

To see if it feels like the right support for you, please visit HeartfulSpeaking.com. If it is, register to receive the call-in details. Then make a date to be on the call live, because one person attending live will WIN a 30-minute signature story makeover with my personally (a $250 value).

Don’t let our human tendency to “compare and despair” keep your powerful message from the people it could serve. You have more to offer than you think. And the world really does need you.

So, what’s your “swim team” story? Give it some love in the comments below and see what happens. I think you’ll be pleasantly surprised.

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In memory of a childhood friend

Yesterday, the first of my childhood group of friends died. He was 44 years old.

I don’t even know where to begin writing about this, but clearly I have to write about it. As the day went on yesterday, I became increasingly less functional, from feeling shocked and stunned, to quietly lost, to light-headed and shaking, until finally, closing the refrigerator door after searching in vain for something I felt like eating, I collapsed into great heaving sobs. What the fuck?

Jason Blum and I weren’t close. I knew him not at all as an adult and, truthfully, I didn’t know him very well when we were kids either. We were part of a large group of friends who shared their pre-adolescence, in all its steamy, raucous, heartfelt curiosity, exploring our independence and hormones with the fervor only middle-schoolers can muster. Many of us went to high school together, too, and though I stayed close with only a few from our middle school group (choosing instead to spend my time with the drama crowd and progressively older boys) when our 10-year high school reunion came along, the kids of my youth were the people I wanted to see. And I wasn’t the only one who felt that way. A good twenty of us crowded around a single table, remembering the wild adventures we’d shared all those years.

Which brings me back to Jason. He wasn’t among my closest confidantes, but he is a constant in my memories from that time.

He came to our school in fifth grade, I think. He was dream-y cute and found quick entry into our clique. I remember him being sort of gangly, sweet, and REALLY funny, a bit goofy too.

For some reason, I remember him running up to me in the hall outside Ms. Trafton’s classroom, begging me to hide him from Adar Bolton, who I could see walking slowly toward us from the far end of the hall. Jason showed me the 1/2 inch gash in his arm that Adar had put there with her long fingernails, a sure sign of puppy love. “She’s crazy,” Jason squeaked, with a perfect ten year-old’s dramatic gasp. As Adar got closer, Jason took off down the stairs. Adar walked up to me and, with a sly smile, showed me the thumbnail she had trimmed to a sharp point. “I’m gonna get him soooo good,” she said and turned to follow him down the stairs.

I remember playing tackle, a ball-less, rule-less game where the boys would chase the girls and, if successful, tackle them on the grass field — just to get up and do it again. The following year, we graduated to kiss-tackle, where the reward of a kiss was added to the full-body contact blows. We all chickened out before it became French kiss-tackle.

I remember roller skating through the streets of Beverly Hills, a hoard of us, all with T-shirts that said “Rollers” on the back. In some wild stretch of the imagination, we might have been a fierce looking gang if the front of the shirts hadn’t had the logo from the Broadway show “They’re Playing Our Song.” (David Brower’s dad had written it or directed it or something, and the shirts were free.)

I remember the jittery, dangerous thrill of attending a small “boy/girl party” at Jason’s house, one in which it was declared that Spin-the-Bottle was for little kids and it was time to play Seven-in-Heaven. I remember “heaven” being inside Jason’s bedroom closet, and David Brower and I dutifully going in only to sit in the dark, without touching, for 6 minutes and 50 seconds, until the pressure of our evaporating opportunity forced us into kissing. Someone opened the door and took a picture of us at that moment — neither David nor I noticed — but it was later flaunted as proof of our intimacy.

Cracks me up to think of it now. All you could see was the back of my head and the long, blonde curtain of hair hanging from it. David and I were both so shocked that we hadn’t noticed a flash picture being taken… Ah, young love (with a little bit of nervous terror thrown in). I thought of that night often, walking past Jason’s house everyday on my way home from school.

Jason played drums and had his own drum kit, something that gave him rock star status near instantly when we were ten. Three years later, I remember he and his kit in the center of our graduation stage, as the glee club sang “I Sing the Body Electric” from Fame. Jason seemed caught between thinking the whole thing was stupid and enjoying the spotlight. I’ve no idea how he really felt.

Jason and I were not at all connected in high school and I lost track of him the moment we graduated. Then, a couple of years ago (thanks to Facebook), we reconnected, even talked on the phone a couple of times. I was surprised to hear he’d become a Los Angeles police officer. He seemed to me to have a profound disdain for authority when we were teenagers. I more expected him to be on the other side of the law. Shows you how well I knew him.

He served 20 years, until a terrible accident landed him behind a desk and he chose to retire. We bonded a bit over having suffered terrible, physical injury. He had been quite lucky to escape paralysis, actually. And I think he was genuinely affected by my lack of such luck.

Then, we lost touch again until I saw a post on Facebook saying he’d died.

Trying to make meaning of my emotions, I find myself returning again and again to a single image — a group of us, in the courtyard at Kim Ingber’s house, sitting in a circle while the soundtrack to The Rocky Horror Picture Show plays in the background. I’m not sure why my mind settles on that image since I don’t think Jason was there. Nevertheless, I see the scene in stop-motion, our faces and gestures frozen in time. As I scan the circle, the smiles and jeers, it’s clear that none among us would have guessed that, someday, I’d be unable to walk and Jason would be dead at 44.

And I guess that’s what this comes down to, at least in part, a sense of vulnerability and the inescapability of our mortality. I used to be quite close to both, for a few years at least after my accident. But a bustling life and relative safety have dulled my sensitivity, or perhaps bolstered my denial. In the darker moments of this last day, I’ve been reminded that I and my childhood friends are at an age where we’ll soon discover who among us will have cancer or heart disease. Unfortunately, we already know at least one who will die young.

Of course, in extremely dark moments, these thoughts have carried over to my young son, wondering what unimaginable horror might await him. Thankfully, though, an equally powerful thought has occurred: What joy and wonders await him, too?

It’s true that none of us back then could have imagined the tragedies that have occurred, but we also could not have imagined the wonders — the extraordinary adventures, the dance companies founded, the public service, the over-the-moon thrill of being parents. These dreams were forming, but who knew just how glorious our collective lives would be? I, sure as hell, didn’t.

So while I grieve and sit with the terrible discomfort of life’s uncertainty, I am grateful to be reminded that now is a time to live. And looking at my life, it’s clear that I am doing exactly that. And that this is a good, good life. I’m Mama to a extraordinary, joyous little boy; wife to a deeply devoted husband; friend to several communities of loving like souls. I’ve done good work in the world, touching the lives of thousands of people, and hundreds of children before that. I use my gifts, and haven’t let loss or fear steal my life. I pray I have many more years ahead of me but if I don’t, I can die knowing that I have truly lived.

I didn’t know Jason well-enough to know if that was true for him. From what I’ve read other people writing, it seems perhaps it was. Those who loved him appreciated him deeply, his humor, his fierce love, his devotion.

For me, I’m warmed by the memories of our shared emergence, and grateful for the gift he’s given me today. I’m grateful to be reminded to live and laugh and love, now. I hope every day of my life going forward will only honor that gift.

Jason Blum 1968 – 2013

May you rest in peace.

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The best New Year’s Eve party EVER

Six years ago today, I did one of the smartest things I’ve ever done… I married Dean.

I didn’t know at the time he was the love of my life (I just knew I wanted to be with him) but after ten glorious years together, it’s starting to look like he just might be.

We married on the five-year plan. No “’til death do us part” in our self-composed vows. I needed enough commitment to feel secure but not so much I’d feel trapped. I have issues.

And that’s the wonderful thing about Dean (actually, one of many). He loves ALL of me. Somehow he manages to embrace the whole, complicated mess, something it took me much longer than ten years to do for myself. I only hope I’m as generous with him as he is with me.

We re-up’d last year for another five. Smart, again.

In honor of Dean, our choice, and this day, I’m revisiting the vows I made. Only he can say if I’ve lived up to my promises. For my part, I’m happy to say these sentiments are as true and meaningful to me today as they were six years ago.

Dearest Dean, you are for me… And I, my Beloved, am for you.

“My Darling Dean,

In love and with a joyful heart, I offer all of me to all of you — to live, laugh, discover and rejoice; to work, comfort, love and create; to enjoy, share, grow, and become; to play and to be together.

I offer my arms, always a haven, that your feelings and fears, your dreams and your truth, be safe.

I offer my eyes, witness and mirror, that I may see you truly and reflect back what I have seen.

I offer my heart, that I may receive you with compassion and shower you with love.

I offer my wisdom, that you may have counsel and that I may know when to seek it myself.

I offer my courage, that I may tell myself and you the truth, that I may ask for what I need, that I may make space for all that is you.

I offer my support, that you may become who and what you truly want to be.

I offer my vulnerability, that we may not be separated by defensiveness, that we may strengthen our trust through practice.

I offer my humility, that I shall always be moved by the purity of your love.

I pledge to invest my love and my time in the wellness of our relationship and not to take anything we have for granted.

I pledge to honor or differences by respecting your ways and not expecting you to be me. I pledge to seek bridges when we are divided by opinion, experience or culture.

I pledge to care for and maintain my physical and mental well-being. I pledge to continue to deepen my understanding of me, that I may be empowered to recognize my part in what happens between us.

I pledge to acknowledge and appreciate you.

I pledge my willingness to come back, again and again, to the heart of who we are, to stay in “it,” whatever “it” is, and should we falter, I pledge to employ every resource I can find to restore balance and harmony between us, and to remain, in good faith, until we are well or until all resources are exhausted. I pledge my flexibility and my trust.

I pledge to communicate honestly, openly and with love, as early as need be.

I pledge to nurture our passion, nourish your playfullness with my own, and love you will all my heart.

I am before you partner, companion, lover, friend and, if you will have me, I’ll call you now husband and my Beloved.”

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How to manage fear, Aidan style

People think of me as a pretty brave person. I suppose that’s because I do a lot of things that would scare most people. If you can’t imagine living your life loud and independent from a wheelchair, or telling your tender, intimate stories on stage in front of hundreds, well, then, I probably seem super courageous.

But fear is relative. When I see someone publicly throwing herself into a new endeavor, all gangly and awkward, I think, wow, she is so brave, because I don’t like being publicly gangly and awkward. It might really be no big deal for her. No courage required. But for me, it would be quite the stretch.

Still, we all have things that we’re scared of, big things, little things, things we should probably avoid anyway, and things we’d really benefit from getting over.

Take Aidan, my two year-old. Aidan is afraid of beeping sounds.

When he was a baby, he got the bejesus scared out of him by a ringing phone. A few months later, we had a very unfortunate encounter with a malfunctioning carbon-monoxide detector that scared him so badly he wouldn’t go into the dining room for weeks. Ever since, he’s been extremely sensitive to any kind of beeping sound, and he doesn’t like to be near things that he thinks might beep.

Given the age in which we live, you can imagine how problematic this is. From our phones to his grandmother’s hearing aids, Aidan’s world is FULL of things that beep. So, we’ve spent some time trying to help him cope.

For the most part, that’s been a process of acknowledging that, yes, some things beep and, yes, sometimes they beep unexpectedly. AND, whey they do beep, nothing happens.

Well, today, while I was making his lunch, Aidan pointed to the glass door across the room from his play spot on the floor just outside the kitchen and announced that something was beeping. It took me a moment even to hear it but, sure enough, something outside was faintly beeping. I told him rather nonchalantly that I heard it too and, when it stopped, I noted that for him. Aidan went back to playing.

When lunch was ready, I discovered a mess of puzzle pieces strewn between me and the table and asked Aidan to get the lunchbox he uses to store the pieces so we could clean up. He stood up and froze.

I thought he didn’t know where the lunchbox was, so I pointed out where it was sitting on the low table near the glass door, and asked him again to go get it. He started moving toward it but in infinitesimal steps.

I couldn’t quite figure out what was going on, and I was just about to tell him to speed it up, when I heard him talking. Very quietly, under his breath, he was saying, “Nothing happens. Nothing happens. Nothing happens.”

And then it hit me. The lunchbox was right next to the glass door through which he had heard the beeping. And he was afraid to walk over there and get it.

My heart exploded. But I stood my ground because, unlike other times, when he’d clung to my leg, or simply refused to go somewhere, he was inching, step by step, willfully, intentionally, toward the door.

I didn’t have to be afraid of the door myself to realize just how brave he was being. I watched in awe as he slowly crossed the room, talking himself through each step.

When he reached the lunchbox, he turned back to me with a huge, proud grin and I let out a cheer. “Hooray!! You did it!” He stood there for a minute, smiling, then picked up the lunchbox and brought it back to me.

I’m immensely proud of my boy but, truly, it’s more than that. I am humbled by his courage. A few days ago, I made a big commitment toward my next professional step and I’ve been ever so slowly backing away from it since. And here was my two year-old, summoning the strength of an ox to walk into his fear headlong.

Thankfully, I am fortified by Aidan’s spirit. And his lesson is crystal clear: When afraid, keep taking steps toward what scares you, small as they may be, and talk yourself through, until you arrive. I’m sure it’s a lesson we can all use.

And I’ll tell you this, Little Boy. If you can do it, so can I. And in your honor, I promise I will.

Aidan and his lunchbox

 

 

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Honoring the ugly door — Giving adversity its due

I’ve been hearing a lot about gratitude these days. Normal, right? Thanksgiving inspires us and we’re posting, tweeting, blogging, talking about the things we’re grateful for. I love it. Gratitude brings warmth to our lives, and in its glow, everything feels good. We feel hopeful, nourished, sustained. Really great stuff, and the world I want to live in. But something’s missing.

I’m hearing ample gratitude for the “good” in our lives — our loved ones, our livelihood, the kindness of strangers, our plentiful planet. What I’m not hearing is gratitude for our adversity.

Last week, I was the guest speaker at the Goddess Temple of Orange County. In anticipation of Thanksgiving, the theme was gratitude and blessings. I chose to talk about unlikely blessings, those events and experiences that challenge us, sometimes to the core, and yet also change us and our lives so much for the better.

My colleagues and clients in the coaching world know a great deal about these kinds of events. Many of us heart-centered, social ‘preneurs were driven to the work we do by challenging experiences in our lives. We emerged from those long, dark nights with purpose and expertise, and now we fulfill our mission by lighting the way for others. And yet, even in the coaching world, where it seems everyone is talking about the power of gratitude, I’m not hearing much gratitude for the struggles that brought us to where we are.

Before we go on, let me be clear about something — paralysis sucks. The daily incontinence, the brittle and breaking bones, the amount of time and energy it takes to get dressed or get in and out of the car. You can be sure when my son pulls at my shirt and says, “Mama, up!” gratitude is the last thing on my mind. And yet, when I look at the greatest blessings of my life, the gems that live at the very heart of me, they ALL arrived through the doorway of paralysis.

Paralysis brought out the best in Dean, and slowed me down enough to notice that best, to notice what I assure you I had been doubting. There is no question in my mind that, were it not for that, I would have left him. Maybe not immediately, that month or the next, but eventually, certainly within a year. And what a loss it would have been. But thanks to my accident, Dean and I found each other in a whole new way and, ten blissful years later, I’m profoundly grateful for that.

That would be enough, easily, but being with Dean brought our beloved Aidan, who overwhelms me with joy dozens of times a day. And let’s not forget Reba, who is part of this family in huge part because Dean wanted a dog, and who, by definition, could not be mine were I able-bodied. Without the events of Oct. 4, 2002, this family wouldn’t exist, simple as that. And there is not a day that goes by that I am not grateful, over and over again, for the magnificence that is my family.

My work, too. Before my accident, I was sort of floating, making a meager living working for a non-profit and creating theater with talented friends. Within months of hitting the ground, though, I’d embarked on a mission. The events surrounding my fall were so extraordinary they gave me not only something really important to say, but a drive powerful enough to push past the fear and resistance. Ten years later, I’ve been extremely privileged to share those stories with thousands of people around the world. And I have been beyond blessed to be so frequently on the receiving end of others’ gratitude, expressing how profoundly my stories have changed their lives.

Falling taught me the most remarkable lessons, and somehow it fine tuned my existing skills so that I could share those lessons, and teach others how to share their lessons, in life-changing ways. Who I am professionally, and the extreme joy I get from that work, is so far beyond anything I’d ever experienced before the fall, I can hardly describe it (which is saying a lot for me!). How can I not be grateful for the catalyst of that transformation?

And that’s really what it comes down to. In my case, tragedy was a catalyst for extraordinary transformation.

I had a Chinese medical doctor in the early months of my injury who told me that paralysis was going to make me a better person. All I could think of when he said it was, you know, I’m already a pretty good person — do I really need this? But he was so right. It wasn’t about moving from bad into good, it was about moving from good into golden.

Paralysis has definitely brought out the best in me. It’s made me kinder, more compassionate, more generous. Goddess knows it’s made me more patient. It’s brought out my resilience, and shown me courage I did not know I had. It’s made me more still, yes, in very painful ways, but also in the best possible way. I am so much more able to receive, to allow good things and good life to flow into me. And maybe most importantly, it’s given me voice, and I am serving others with that voice. For all the pain and heartache and frustration, paralysis has brought out my brilliance, and I am shinier than I ever imagined I could be.

Yesterday, while sitting together on the couch in a post-feast stupor, Dean told me that our friend Erica’s house had burned to the ground.

I met Erica a couple of years ago when we were both fellows at the Vermont Studio Center, I for writing, she for art. The Vermont Studio Center is the largest international artists’ and writers’ Residency Program in the United States, and we bonded over the shared experience of navigating rural Vermont with mobility impairments. She made a practice of launching her body in the direction she wanted to go and then hoping for the best. I enjoyed both her artistic sensibility and her intrepid spirit.

When Dean gave me the news about Erica’s house, the first thing I said was, “Oh no. That’s terrible.” And it is terrible, just like falling out of a tree and becoming instantly paralyzed is terrible. The losses are real and dear. These kinds of events are true tragedies. But they can also be extraordinary blessings. Erica’s house burning down might just turn out to be one of the best things that ever happened to her, in the same way that paralysis turned out to be one of the best things that happened to me.

And so I’m giving myself this challenge: While I’m holding the pain of Erica’s loss, while I’m empathizing with the shock and grief she must be feeling, maybe I can also hold something else. Maybe I can hold the possibility of blessing, of opportunity and transformation far more wonderful than we can imagine at this moment. Maybe I can plant a seed of gratitude that in a few months or years, might grow into a beautiful tree, shading us from the scorching heat of this loss. And we will be thankful for it all.

So now, my friends, I’m extending the challenge to you. Is there some loss or heartache you can give a little needed hug? While we’re still in the mood for gratitude, before massive consumerism and lethal sugar consumption addle our brains, can we look into the painful places and acknowledge the lessons we learned, the changes we made, the relationships we formed, the purpose we found… and give thanks? Can we feel genuine gratitude not in spite of our hardship, but in fact for our hardship? Because it’s not just about the wonderful things we found on the other side of an ugly door. It’s also about the door.

Happy Thanksgiving, to one and all.

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