Welcome!

Welcome to It’s Not About The Chair. I’m Lyena Strelkoff and I make my living empowering people with true, transformational stories about my life with a spinal cord injury. My hope is that this blog will be a place to laugh, learn, heal and grow together. Because, ultimately, it’s not about the chair, or any other obstacle we might face. It’s about the choices we make, the spirit we bring, and helping each other thrive. I’m so glad you’re here.

Opening the cage

I’m completely shocked to see it’s been nearly two months since I’ve posted. Yikes. I knew it had been awhile but two months?? Wow. I can’t begin to tell you how much I’ve missed you.

I’ve been really distracted by other work endeavors, some I’m quite pleased to have devoted my time to, others that have felt like pulling molars with my bare hands.

Then yesterday, I had a breakthrough. Or breakdown… Usually the same thing. Feeling a very familiar crankiness and growing depression, I started listing to a friend all that I’ve been up to, actually attempting to explain why I’ve not got more molars in hand. When I got to guiltily confessing the joy projects I’ve been accepting, I collapsed into sobs.

First, it feels terrible to feel guilty for doing what you love. A sure sign that priorities are askew but it’s hard to see that when said priorities are at your back, whipping you into shape.

Second, the sometimes VERY small voice inside me that represents my heart’s desire has a tendency to be drowned out by the VERY loud voice of… well… everyone else inside me. So, it’s hard to get my bearings or find a suitable guide.

But when that awful guilt turned my chest inside out, the voice (how small and pathetic she sounded) drifted past her cage and said, “That’s what I really want.” Which is when the sobs started rolling.

And what a relief. A big cry when you really need one is a most satisfying thing. And I realized, with the help of my friend, that I can have/do what I want. The priorities are mine to set and let me tell you, they are a-changin’!

I’m not actually as confident as that sounds… Just so you know. But I am committed to making my best effort. That’s something, even a lot. And if not entirely confident, I am at least hopeful.

All this to say that this blog, writing and connecting with you, is actually really important to me. I’m not sure exactly what I’m going to do with it, but shelving it for two months at a time ISN’T it. And I’m actually really excited to be contemplating a new, better drafted set of priorities. I feel some trepidation too, of course. There were, afterall, compelling reasons for setting the priorities the way I had. But with some help, I hope to stay closer to what I love, without the guilt and pressure, closer to my own heart and to all of you. Thanks for riding along.

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“Truth” in storytelling — Mike Daisey’s delusion

I was just listening to an episode of This American Life where Ira Glass and others confronted actor/writer Mike Daisey about inconsistencies and untruths in his monologue about conditions he supposedly witnessed at Apple factories in China. Wow.

As a writer/performer who creates compelling theatrical pieces out of real life events, I can’t tell you how important this topic is to me. And while you might think I would side with Daisey, I absolutely do not.

Here’s the background as I understand it: Daisey visited China and, along with a Chinese interpreter, interviewed workers and toured factories where Apple products are made. Then he crafted a theatrical monologue where he shared stories about the people he met and the conditions he witnessed. He claimed the stories were true, and excerpts from his monologue were featured on This American Life.

Then a public radio journalist, who has written about and lived in China off and on for ten years, heard the stories and became suspicious (sorry, I can’t remember the journalist’s name). He had, in the course of his career, reported on Apple factories and found many of the details in Daisey’s show doubtful. So, he did a tiny bit of digging, found the interpreter Daisey used, and started checking out Daisey’s story piece by piece.

What has now come out is that much of Daisey’s story is dramatized. Some details are exaggerations of what happened. Others appear flat out fictitious.

The producers of This American Life are mortified. They take very seriously the journalistic code governing their stories, namely that they are, indeed, true, as best as can be determined. In their own opinion, they fell short of that code when it came to corroborating Daisey’s material, and their regret was transparent in the show I heard. What struck me, though, in the episode, was Daisey’s position.

He was interviewed several times for the episode and admitted to embellishing facts and actively trying to keep the producers of This American Life from checking those facts with the interpreter. He also expressed very genuine regret that he allowed his work to air on This American Life, where it would be presumed to be journalistic in nature. However, and this is what got me, he insisted that in the context of the theater, it’s OK to call something a true story that isn’t quite. I couldn’t disagree more.

I believe that it’s OK for storytellers to tweak the truth for the sake of drama. Humans have been doing that since we began telling stories. But I also believe we have to own those tweaks. Films use the disclaimer “based on true events” or “inspired by real life events.” I see no reason why theater (or books, for that matter) should be allowed a different standard.

Daisey balked at the idea of calling his work fictitious because, he said, “fiction” didn’t encompass the totality of what he’d created. And I can relate somewhat to that sense. Fiction implies it’s all made up, and clearly Daisey’s piece isn’t entirely fabricated. But “truth” implies an equally extreme position on the other side of the spectrum. When Daisey tried to assert that theatergoers, because they’re in a theater, recognize a more middle ground definition of truth, Glass suggested Daisey was deluding himself. Not only were theatergoers taking Daisey at his word, but so was the rest of America. Daisey has become one of the most vocal and sought after critics of Apple. He’s appeared on dozens of news programs and written Op-Ed pieces.

Now, aside from the questions that come up about the lack of fact checking by those organizations, I agree with Glass. I might be able to get behind Daisey a bit more if he’d been playing characters in an obviously theatricalized production. But his piece is a monologue of first-person stories touted to be true.

This really came home for me hearing an excerpt of Daisey’s show. It’s thought by many to be the most emotional moment in the play and it was, even over the radio, extremely powerful. In it, Daisey tells about meeting a man whose hand was mangled in an accident while the man was working the assembly line manufacturing iPads. According to Daisey, the man was not given medical attention and was later fired for working too slowly. During their meeting, Daisey pulled out his iPad to show the man. The man gasped because, although Apple manufactures in China, iPads are not actually available there. According to Daisey, the man had never seen one. Daisey reportedly turned on the machine and handed it to the man who stared at it in amazement, then looked at Daisey and said in awe, “It’s like magic.”

Having heard already a great deal about just how much Daisey dramatized his experiences,  and having heard the interpreter who was present at this supposed event claim that it never happened, a wave of raw fury billowed up in me when I heard it. I felt manipulated in the most disgusting way. And while I agree that drama is, by nature, emotionally manipulative, there’s a big difference between the transparent manipulation of fiction and the obscured manipulation of supposed truth.

Of course, all this got me thinking about my own show. Like Daisey’s piece, Caterpillar Soup is essentially a monologue of first-person stories touted to be true. After I tasted that Daisey-induced fury, I started running through the moments of my show, challenging myself to assert their accuracy. It’s not the first time I’ve done that. I’ve done it periodically over the years to make sure that time and favorable audience responses haven’t begun to shape-shift what actually happened. And when I was developing the play with my director, Paul Linke, I was an absolute stickler for telling only what was true. Sometimes, not knowing my story, Paul would suggest a particular direction for the narrative, or he’d presume I had certain feelings and suggest I talk about them. Some of those suggestions might have been dramatically worthy, but I wasn’t willing to go down that road. Hearing Daisey’s story, it’s abundantly clear why.

Audiences all over the country have been deeply affected by the stories in Caterpillar Soup. I have been told numerous times that those stories have changed people’s lives. They have been healing and transformative. Imagine now if audiences discovered that I made them up. Telling my trauma surgeon, moments before surgery on my shattered spine, that I’m a dancer. Wailing into my pillow in the rehab hospital, cursing God for making me still. The magic of Charmlee Park when we returned on the two-year anniversary. Imagine if those moments, some of the most powerful moments in the show, turned out to be fabricated. I sincerely hope my audience would feel betrayed, because that’s what it would be. A betrayal of trust and vulnerability.

I guess that’s what really upsets me, the vulnerability. My audience embarks in good faith on what amounts to a pretty treacherous journey. I lead them through some incredibly difficult terrain in order to reach the golden shores of my deliverance. They open their hearts to my experience and, in return, are rewarded with their own deliverance. To lead them falsely is just wrong.

I’m happy to say that my mental scan came up clean. The stories in Caterpillar Soup actually happened, and happened the way I say they do, as best as memory can confirm. There are only two things that are remotely questionable. One is the moment where Dean and I look at each, after we hear the crack and before I actually start to fall from the tree. I don’t remember looking at him, but Dean insists we did and so I keep in the show. The other is an epiphany that is, in the show, attributed to the second anniversary of the fall but, in reality, occurred on the first anniversary. I tell it the way I do because it flows better in the whole narrative and because the change in time doesn’t, as far as I can tell, impact anything. When I ran this point by Dean, looking for some outside vision, he thought it wasn’t even worth considering.

I recognize that it can be tricky to know how much stretching of the truth or dramatization is allowed in a piece labeled “true.” And I’m the first to admit that the truth is a big place, complicated and contradictory, varied depending on whose perspective is featured. But I believe Mike Daisey did his audience (not to mention Apple) a tremendous disservice. I’m uncomfortable judging him, lest I find myself in his position some day. But if writers create characters who are really composites, or take real events and embellish them, claiming they were there when they were not, they have to make that visible. And I sincerely hope that my readers and audience hold me to that forevermore.

 

 

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Dancing at the Shame Prom — the power of telling our stories

Almost everything these past few weeks has been eclipsed by the writing of a single essay. I don’t recall ever having so much trouble writing something. Maybe my first term paper in high school, but surely nothing since. What a doozey!

It was for an anthology called Dancing at the Shame Prom (Seal Press fall 2012). My friend, Hollye Dexter, is one of the editors and she invited me to contribute.

I was beyond excited when I got the invitation. I knew she was working on it and was secretly envious of the women that had been chosen to write. The premise — personal essays sharing a moment or experience of shame and what it takes to shed that shame — resonated deeply with what and why I write. I knew the result would be very powerful and I couldn’t help but wish I was part of it. Then, out of the blue, Hollye contacted me. I said yes without the tiniest hesitation.

Then, the writing began, and I discovered what I was in for.

Firstly, it was 3000 words. That’s about double the size of my natural storytelling. So, it took a long time to settle into a pace that worked. But the biggest stumbling block was the damn subject!

Every human feels shame. Sometimes it’s momentary, sometimes we carry it around for decades. Often, we aren’t aware that we feel it. It’s such a yucky sensation, so painful, that we distance ourselves from it as fast as we can. And it’s forced to manifest in indirect ways, like in the way (or what) we eat, how much we drink, or the trouble we have in relationships. Just getting to the truth about shame can be very difficult.

But then, shame is silencing, by its very nature. To speak it immediately changes it. That’s good, in terms of releasing it. But it made it hard to capture on paper.

The worst part, though, was how it felt to relive certain periods of my life and intentionally invoke the shame I feel today. Big yuck. It was so hard to obtain the right amount of distance. Too much and the piece lost its urgency and strength. Too little and I was overwhelmed by painful emotion. Such a tightrope. You can imagine my quivering legs.

But it was totally worth it.

The final piece embodies fiercely my approach to life (and storytelling). It boldly honors both the glory and the grotesque, and in the end, it shines with redemption. As usual, authenticity was the key to that redemption. And I am humbled by my own willingness to brave the truth.

It was also transformative to write.

When we claim our stories outright, without denial or embellishment, we are changed by those stories. We find connections we missed while living them and a perspective that alters our relationship to events. The best stories I tell surprise me. They illuminate dark streams carrying bits of gold I’d otherwise miss.

This piece was very much that kind of story. I found shocking connections between my childhood experience and the moments leading up to the fall that paralyzed me. Such revelations are bittersweet, for certain, but I am fuller for them. And grateful.

It was also worth it for the potential effect this piece will have.

Author May Sarton once wrote, “The deeper we go, the more universal we become.” And that has definitely been my experience in a decade of sharing personal tales. When I challenge myself to seek the very heart, which often leaves me feeling the most vulnerable and insecure, that is always when my stories hit most home. Only three people have read this essay (my two editors and Dean) but response has been beautiful. I can’t wait to see how our readers react.

And finally, I have to acknowledge my editors, Hollye Dexter and Amy Ferris. There is nothing that maximizes the power of a story like expert help crafting it. Keen outside vision combined with gentle sculpting turns a good story into a monumental one, a story that ignites and soothes the soul of its listener. I am profoundly grateful for these two women who embody everything I believe an editor or coach should be. Working with them was a delight, even when the work was hard.

So, now we wait. The book comes out October 7. I didn’t know the proposed date when I signed on, but it couldn’t be better. The ten-year anniversary of my fall will be October 4. What a tribute this will be to my life’s effort since being paralyzed. And I so hope, it will also be a grand encouragement. If I stand for anything, it is the power of claiming our stories and using them to say yes to our lives.

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Call me an expert?

I was recently challenged to call myself an expert at crafting one’s personal story into a compelling talk or performance. And I had an unexpected and surprisingly intense response. It felt like my internal organs collectively turned inside out. Curious, at the very least, so I did a little digging.

I’m actually quite comfortable owning my expertise. After nearly ten years of crafting my own story, in various ways for various different audiences, always with terrific results, it would be quite silly to deny that I have some expertise. But, apparently, having expertise and being an expert mean two different things to me.

So what exactly does it mean to say I am an expert?

A rapid succession of things came to mind when I posed this question. It means I know all there is to know about it. It means I know more than anyone else. And it means my opinions about it are correct. Well, yikes. No wonder I wanted to vomit my pancreas when someone suggested I am an expert. Who could possibly fill those shoes?

What’s sort of more alarming, though, if something can be worse than the pressure of pure perfection, is that I project such qualifications on others who claim to be or are accepted as experts. Maybe I don’t do this all the time, but I definitely do it. So much for my critical thinking skills, right? And look out. If I buy you as an expert, you’re going to have A LOT to live up to.

Clearly this definition, aside from being false and unreasonable, is unhealthy, whether I’m using it to define someone else or myself. So, let’s bring it down to size. Being an expert (and I’m talking a bona fide one, not just someone who says they are) means having a lot of experience with something, therefore, knowing a lot about it. It means knowing more about it than many people, sometimes even most people. And it means that your opinions are well informed by your extensive experience, but may not be correct in all situations, for all people. By those standards, I just might be able to stand up for being an expert at crafting personal stories into compelling talks. Just as soon as I swallow my pancreas.

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Spin, Mama, spin

Aidan has gotten into dancing recently. I couldn’t be more thrilled, of course. When he hears music he likes, he plants his feet and sort of bounces in place. It’s not particularly expressive at this stage but no matter. He likes it, and so do I.

I’ve been looking for ways for us to dance together. Sometimes we look at each other while we dance in our own space. Sometimes, I hold his hands while he stands and bounces. But I envy the way he dances with Dean, in his arms, being swung around, bounced, dipped…

The other day, we were listening to Lyle Lovett radio on Pandora. Aidan was enjoying the music and I wanted to experiment with dancing in close contact. So I brought him up on my lap and started moving the chair in swift, sudden bursts. Aidan seemed to like it, so I kept going. But he wasn’t very stable on my lap so I had to hold him with one arm.

I don’t know if you can imagine it, but if I only have one hand free, it’s hard to travel anywhere but in a circle. Pushing a wheelchair with one hand doesn’t result in a straight line. So, pretty soon, Aidan and I were spinning. And that was sheer delight.

Aidan, who was facing me, arched his back over my arm, threw his head back and squeeeeeled. Round and round we went, first one direction, then the other (seemed wise to avoid Mama throwing up). If I stopped, Aidan protested and tried to lay himself out on my lap with his head hanging off. I’d start again and he’d squeeeeeel. Words could not have been clearer: Spin Mama, spin!

I’m glad that we have a new way of moving together. And I’m glad that I didn’t let my heartache about what we can’t do stop me from experimenting with what we can. It’s not always an easy choice. But boy, it’s always worth it.

Squeeeeeeel.

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